Wednesday, August 11, 2010

The Long Hard Road (Our Story for the past 5 months)

I have waited for some time now to share our story of the last 5 months. I knew God would have the victory in our lives, I just didn't know how long it would take. I share this story not to say "Woe is Me" or for anyone to pitty us. I tell our story because my Father God deserves the glory! Without his strength, I know I would be in at totally different place today.
To give some history, for the last couple of years I have been having heart palipatations. I had also been having episodes where I would have numbness and tingling in the left side of my face along with dizziness and some vision loss. I always attributed this to high blood pressure or stress. But after a serious episode that lasted almost an hour, I decided to take a visit to the doctor's office. So, I called my doctor and had an appointment the first part of April. During the visit the doctor did an EKG. He found an abnormality. He also had concerns that I could have a possible aneurism due to the other symptoms I was having. He then referred me to a cardiologist and a neurologist. I was shocked. I remember my comment to him was, "I just came here for you to tell me my blood pressure was off, not this."
I wasn't sure how to handle the news. Admittedly I was a little upset. I could only think of what could possibly happen and how my life could change or end drastically if I had an anuerism.
A couple of weeks later, I began having some weird cravings and aversions to certain foods. I was also very tired all of the time. Jokingly my husband asked if I could be pregnant. I thought, absolutely not. I mean, 12 years and nothing, there is no way I could be. So on April 14th after an unusual reaction at lunch to a mexican dish that I have loved, I thought, maybe just to make sure. So I go by the Rite Aid that was close to my work on the way home. I bought yet another pregnency test. After 12 years of hoping and praying with the same result, I had become a little numb to any thoughts of actually having a positive pregnancy test. So I go home and take the test. Within what seemed to be just a few seconds I had two lines. I looked at the pregnancy test, back at the box, at the pregnancy test, at the box and there it was. Staring me in the face was a positive test. Within a few moments Matt came home from work. As he walked through the door, I walked out of the bathroom in tears holding the test. His first words were, "You're pregnant". Half asking, half telling me what he already knew. We hugged and cried (well, I cried). God's little promise to us after all these years. We proceeded to tell our family and closest friends that day! I was so excited, but decided to wait until after our first doctor appointment to make it public! I couldn't believe it. We called the OBGYN to make our first appointment to confirm everything. We went a few days later on a Monday. It was confirmed. I was indeed pregnant. My due date was December 26th. The OBGYN wanted me to come back in a week to have my first ultrasound. In the mean time she wanted to do blood work to check all of my levels. The next few days were some of the most exciting days of my life. We were planning the nursery, deciding what themes, everything we had waited 12 years to do.
The day after I found out I was pregnant I had my first appointment with the cardiologist. Another EKG confirmed that I had an abnormality and the Cardiologist wanted me to wear a heart monitor for 4 weeks to determine exactly what was going on. He thought I had a condition called Wolf Parkison White which would require a surgical procedure to correct, but it couldn't be done until after the pregnancy. He didn't think it was anything life threatening and that I should be ok during the pregnancy.
The following Wednesday my OBGYN wanted me to come back for more blood work. I received a call on Thursday that the doctor wanted me to come back Friday for another blood pannel. I became concerned. On Saturday, April 24th, I was taken to the emergency room to be told that I had a miscarriage.
My whole world seemed to close in on me. I felt like I couldn't breath. Why was this happening? Why after 12 years of praying and waiting and finally getting to a place of acceptance that I may never give birth to a child would God give me a promise and as quickly as I received it, take the promise away. I cried deeper and harder than I had ever cried before. It was a pain I had never experienced before and wouldn't care to experience again. Even in the ER God was at work. Our best friends, Tara & Jimmy had met us at the ER after I texted her to tell her something was wrong. Uncharacteristly, the ER staff allowed them to be in the room with us for pretty much the whole ordeal. I am so thankful for them. Tara was right by my side for every minute she could be, not trying to make things better, but just confirming with me that the situation sucked! My ER nurse was a very sweet lady. She came in and held my hand and told me how sorry she was. She brought me an angel before we left and told me about a group that she belonged to called the "Butterflys" that were a support group to women who had lost a child. The angel had "Harmony & Peace" on the front with a little butterfly in the angels hands. She told us that we would be in her prayers. We have that angel on the mantel in our living room to always remember our "Little Bean".
That night we were told that I had a fibroid tumor the size of an orange in my uterus, which probably contibuted to the miscarriage. I was numb. I didn't want to speak to anyone or see anyone. I didn't want to get out of bed or take another breath. My precious husband was there by my side holding my hand and loving me through this pain that he was suffering as well. I went to the OBGYN the following Monday for a follow up appointment and had yet another ultrasound. The doctor told me that the fibroid tumor was not the size of an orange, but the size of a grape and had nothing to do with my miscarriage. She assured me that most people have a miscarriage during their first pregnancy and that I did nothing to cause the loss of the baby. Those words offered me little comfort. I still couldn't comprehend how God could do this to me. My OB decided to refer me to a fertility specialist to remove the fibroid tumor, which otherwise my insurance would not have paid for. That was another blessing in the works.
Needless to say, the next several weeks were very hard. But God still worked in my life through this. He allowed me to be able to minister to another friend who had a miscarriage a couple of weeks after mine and connected me with a relative that I hadn't really talked to before this who was having fertility challenges. He placed people in our lives to love us through our pain. God gave us the strength to keep going. I'm not going to say that I don't still have days of sadness when I think about our loss, but I know I still have a promise and a little one in Heaven waiting on us.
A few weeks after the miscarriage I met with the neurologist for the first time. He said that he felt that my symptoms were migraines manifesting in unusual ways, but wanted to do an MRI and an MRA just to make sure.
During the days that I waited for the MRI and MRA appointment to be made I revisited the Cardiologist. After reviewing all the data from the monitor, he was comfortable with diagnosing me with an SVT, which is nothing more than heart palipatations or an abnormal heartbeat that wasn't a big deal. I was so relieved. One down, two to go. After having the MRI and MRA, I followed up with the neurologist expecting to be told that it was indeed mirgraines. What I wasn't expecting was to be told that the results showed that I had Intercranial Hypertension, which is excess fluid on the brain that was resulting in too much pressure. I was floored. I was being sent to have more test to confirm the findings, and was told that I would most probably need to have a lumbar puncture. The doctor advised that I not do any type of strenuous activity and most definitley should put off any plans of pregnancy. Not the words I wanted to hear, yet again!
During the following weeks I had my first visit with the fertility specialist. He talked in depth with us about our options and the test that he would like to run. We scheduled my next ultrasound for July 1st. For the record, waiting is one of the toughest most frustrating things I experienced in all this. But God was teaching me that he is in control, not me and everything unfolds in his time.
July 1st comes around and we go to our next appointment. I had the ultrasound in which the doctor found that the fibroid tumor was indeed the size of a grape and should have no effect on having a healthy pregnancy. He found another minor issue, but it was nothing that would effect a healthy pregnancy either. It was wonderful news! He also told me about a study the office was getting ready to do for women with PCOS (polycystic ovary syndrome). He felt that due to my history I would be a perfect candidate for the study, which would include free fertility treatment (that my insurance didn't cover). So, two down and one more to go!!
Which brings me to today. August 11th, 2010. My neurology appointment. I had been praying for positive results of course! To my delight, I received those positive results. After comparing all the test, the neurologist determined that I did not in fact have intercranial hypertension, but indeed had migraines. I was cleared to live life as normal. He told me that he would pray for Matt & I to be able to have a child and have a healthy and happy pregnancy and baby. God was all over that one! Not many doctors these days freely share that kind of sentiment. To me, it was God's way of confirming that my lessons had been learned. That he was in control and everything happens in his time and is always with me no matter what.
I could not have made it through these past few months on my own. God carried me using my wonderful family, friends and the special people he placed in my life along the way. It has been a hard road, but I know that God is good. He is loving and he is true. God did not cause all these things to happen to me, but he carried me through the pain as they did. I wanted to blame God. But he helped me see in all this that his nature is love and mercy. I stopped asking "Why Me, God?" and began asking, "How can I glorify you through this God?". My prayer is that I have and will continue to.
We have had other things to happen in our family, including my mother and grandmother both falling and breaking bones in the past several weeks, as well as job challenges. But God continues to prove faithful!
I still have some rough spots, grieving my loss at times. But it's a healthy grieving, part of being human. I don't stay there and I don't let it control me. I know I have a hope and a promise for the future. I know that "God works for the good of those who love him, who have been called according to his purpose."(Romans 8:28) I also know that according to Isaiah 43:1 He has redeemed me and called me by name. I am his.
And as a side note - We begin the fertility study in a few weeks! Pray for us!! :)

8 comments:

  1. Julie,
    I am so happy you shared this. It was tough knowing all of this was happening and not being able to take away the pain. Your strength in God pulled you through and your persistant faith has brought you to the other side of the valley. God has and will continue to use you through all of this. He is faithful! Praying for your new journey. May it be one of hope and promise!
    Love you my friend,
    G

    ReplyDelete
  2. I commend you on your boldness and your open sharing my darling friend. You have no idea how often I ask God why all of my friends struggle so badly with pregnancies and He allows me to "pop 'em out." Thank you so very much for being open to ministry opportunities even when you could have slammed the door in His face and wallowed. It is a tribute to what a Godly family you and Matt are. May peace and courage continue to wash over you daily my darling friends. You have no idea how proud I am to be counted among yours.

    ReplyDelete
  3. Julie I am so happy you shared this with us. I knew that you and Matt had a real struggle ahead of you and that through the grace of God you would both be okay. I tried to contact you but Matt said you weren't ready to talk so I didn't try again knowing you would come to me when you were ready. I am so thankful that things have turned out the way they have and that these things you can live with and look forward to that beautiful day that God will bless you and Matt with a wonderful child if it is in his will. I know there are only good things ahead for the both of you. I love you very much. Edie

    ReplyDelete
  4. oh girl, as always.... i just simply love you <3
    michelle horbert

    ReplyDelete
  5. Julie,
    This is a beautiful testimony on how God does everything in His time not ours. I will be praying for you as I always have. Hopefully in a about 12 months from now you will be holding a precious baby girl or boy. I know how you feel to have lost one. My God grant you this blessing of a little one. Keep me posted! So glad the other test came out good. Praying for you and your family.
    Love in Christ,
    Teresa

    ReplyDelete
  6. Julie, thank you for sharing your pain and as I read your words I felt your pain because I went through some of the things you have suffered. We had a difficult time conceiving over 5 years, and after taking fertility pills I got pregnant, only to carry the baby 6 1/2 months, I felt the hurt, anger, sadness that you feel now, but later tests let me know God loved me, Gene, and our baby so much that He knew it was best to take our baby then rather to face the life it would live because of all the abnormalities it had. I tried to reason with God that I could have loved it and be a wonderful Mother regardless of the baby's condition, I was being selfish. Fifteen months later, our only daughter, Drea was born, completely healthy. God showed us His love for us was stronger than we could have ever imagined. That was 41 years ago and I thank God each and every day for the beautiful daughter He gave us, not just outward beauty, but a loving, caring, beautiful daughter who is now a Mother herself, after going through what you have (PCOS). She and her husband tried for almost ten years to conceive, they finally put in for adoption and 3 years later adopted a beautiful little boy, then 2 years later they were able to adopt his brother; then when the baby was 6 months old, Drea found out she was pregnant, after 15 years, and had a beautiful little girl, who is now 2 years old. Drea went through far more than I did, but her faith grew even stronger, and she like you, have a beautiful story to share. I have a plaque hanging in my den for me to see each day that has the praying hands with these words..Time spent waiting on God is time never wasted. These words are so true, when we trust God and wait for His timing, our blessings are more than we could ever hope for. If my first baby had lived I am sure we would never have tried again, and we would never have known the love and joy of being Drea's parents. If Drea and Greg had had a baby when they were younger and trying so hard, then we never would have had Joshua & Daniel and
    Hope. I know I have written far more than I planned to write, but hopefully it will help you to know to be thankful for the baby God gave you then carried it on to Heaven to wait for you there; and to know when we trust God and wait for Him to answer our prayers He give us more blessings than we could have ever asked for. I will keep you in our prayers and pray for God's miracles to be bountiful for you, and continue to fill your life with love each day. We love you and your dear family. Love in Christ, Joyce Pierce

    ReplyDelete
  7. Hi Julie..this is your aunt Jette..and I just wanted to say your story was really amazeing..its true that God is very good, and he has a plan for us in all that we do..we may not understand that plan at times and get very discouraged but he knows the final out come and will never give us more than we can handle..5 years ago I was diagnosed with a brain anerysym 6 months after having my second child and had to have major brain surgery in which I survived with no real problems..then 3 years ago diagnosed with mutiple sclerosis..with all this I just keep moveing forward because I know that all this is happening for a reason not one that I know but God knows and he will guide me through it..Im praying for you and your family and know that we are here for you! with much love..Aunt Jette :)

    ReplyDelete
  8. Thanks for sharing, Julie. More people need to know that God does not cause these things to happen, but carries us through them and heals our hearts. You're openness is touching and so is your story - I have a similar one, as do many others...but most of us aren't bold enough to share the experience and the victory. Thank you for being a willing vessel - every one of us needs to be reminded of these lessons. You are truly a blessing!

    Susan Moeller

    ReplyDelete